November 20, 2019

NEW PAPER: Are people willing to share digital data for biological research?

NEW PAPER: Are people willing to share digital data for biological research?

Question: Are people willing to participate in research advertised on the internet, and is willingness to participate associated with type of study sponsor?

Findings: This mixed-methods survey and qualitative study of 914 respondents indicated that they were more likely to participate and share their social media data with researchers in university-led research studies than in studies conducted by the US federal government or pharmaceutical companies. However, only 49.3% indicated they would share their social media data at all.

Meaning: These findings indicate that researchers may face challenges in recruiting representative samples when recruiting from internet platforms.

Read Paper: Contemporary Views of Research Participant Willingness to Participate and Share Digital Data in Biomedical Research


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