September 3, 2020

National COVID Cohort Collaborative Data Enclave Launched

National COVID Cohort Collaborative Data Enclave Launched

We are pleased to announce the launch of the National COVID Cohort Collaborative Data Enclave. From the NIH-NCATS announcement:

Researchers studying COVID-19 now are able to access an innovative new analytics platform that contains clinical data from the electronic health records of people who were tested for the novel coronavirus or who have had related symptoms. Part of the NCATS National COVID Cohort Collaborative (N3C) Data Enclave, the centralized and secure data platform features powerful analytics capabilities for online discovery, visualization and collaboration. The data are robust in scale and scope and are transformed into a harmonized data set to help scientists study COVID 19, including potential risk factors, protective factors and long-term health consequences.

Sage’s Justin Guinney (collaborative analytics), and John Wilbanks and Christine Suver (data partnership and governance) have served as workstream leads.

Some of the results so far include:

  • 58 data transfer agreements (DTAs) executed
  • 43 sites obtained IRB approval (local and sIRB)
  • 41 sites have both DTA executed & IRB approval (can begin data ingestion)
  • 35 sites have an executed DUA
  • 26 sites have deposited data in the N3C pipeline

This is a unique resource that represents a long held goal of data integration across the U.S. clinical translational research system. But, without data users, data commons don’t mean much. Please register and use the data.