Megan Doerr, a principal scientist at Sage Bionetworks, delivered a TEDxKC talk about how tricky it can be to keep your data private and also the importance of safely sharing your health data with scientists. Watch on YouTube.
June 16, 2020
TEDx Talk: Have You Given Away Your Medical Privacy?
Bringing Structure and Design to Data Governance
Before COVID-19 took over the world, the Governance team at Sage Bionetworks had started working on an analysis of data governance structures and systems to...View full article
National COVID Cohort Collaborative Data Enclave Launched
We are pleased to announce the launch of the National COVID Cohort Collaborative Data Enclave. From the NIH-NCATS announcement: Researchers studying COVID-19 now are able...View full article
Democratizing data access
Open Data Sharing in the 21st Century: Sage Bionetworks’ Qualified Research Program and Its Application in mHealth Data Release As a leading advocate for open...View full article