2022
November 15
Sage Bionetworks launches new coordination center with the National Cancer Institute to increase collaboration and resource sharing across the cancer biology communityOctober 17
Sage Bionetworks awarded NIH grant to facilitate collaborative translation research on exceptional longevitySeptember 6
Going Beyond Informed Consent: The Power of Participatory ResearchSeptember 6
Sage Bionetworks and Wellcome Trust create roadmap for future global mental health databankApril 19
Sage Bionetworks Appoints New Chief Operating OfficerFebruary 28
Sage Bionetworks Appoints New Chief Data OfficerJanuary 4
Sage Bionetworks and PPACMAN release Psorcast app to support patients with psoriatic disease and health researchers
2021
November 23
Three Principles for Collaborative Benchmarking ChallengesJune 8
Introducing NLPSandbox.ioMarch 3
Cancer Complexity Knowledge Portal LaunchedFebruary 24
Applied ELSI research at SageFebruary 22
Third edition of IRB reference manual released with new chapter on mHealthFebruary 4
Expanding the Community
2020
November 18
The Global Mental Health Databank – Practicing Better Science TogetherNovember 18
Collaborating with youth is key to studying mental-health managementNovember 5
Sage Joins DAPI Project for Down Syndrome ResearchOctober 9
Discovering Keys That Could Unlock Better Personalized Treatments to Destroy CancerSeptember 16
‘The Playbook’ Is Essential Guide for Developing & Deploying Digital Clinical MeasuresSeptember 9
Bringing Structure and Design to Data GovernanceSeptember 3
National COVID Cohort Collaborative Data Enclave LaunchedJune 30
dHealth Digital Health Knowledge Portal LaunchedJune 17
The Michael J. Fox Foundation and Sage Bionetworks Announce Winners of the $25,000 BEAT-PD DREAM ChallengeJune 16
TEDx Talk: Have You Given Away Your Medical Privacy?May 1
COVID-19 DREAM Challenge Has LaunchedApril 9
Sage Assembly WebinarMarch 6
Competition yields new approaches to trace development, cell by cellMarch 2
Press Release: DM Dream ChallengeFebruary 26
Uncovering Therapeutic Strategies for Neurofibromatosis Type 1February 19
Sage Perspective: Retention in Remote Digital Health StudiesFebruary 17
Evaluation of Participation in Digital Health StudiesFebruary 13
Sage Joins Open Wearables InitiativeJanuary 23
Democratizing data accessJanuary 14
The Sage Perspective on Data Management and SharingJanuary 14
The Sage Perspective on the American Research EnvironmentJanuary 13
Principal Scientist Brian Bot Wins 2020 General Symbiosis AwardJanuary 13
The Michael J. Fox Foundation and Sage Bionetworks Launch $25,000 BEAT-PD DREAM Challenge
2019
December 17
AACR Project GENIE Serves As Hub and Harmonizer for Cancer DataNovember 25
New Papers: Remote Retention in Digital Health Studies, Machine Learning, Reproducible BenchmarkingNovember 20
NEW PAPER: Are people willing to share digital data for biological research?November 8
DREAM Challenges Announces Changes in Its Leadership That Support a Rich Future in Open BenchmarkingOctober 31
Trusting Tech Companies with Our DNA Data A ‘Tough Sell’October 25
Sage Platform Team Officially Launches Data PortalsOctober 22
Sage Bionetworks Appoints Ljubomir Bradic as Director of DesignOctober 18
VIDEOS: Watch Talks from Sage’s mHealth App Developers WorkshopOctober 1
The Value of Team Science in Alzheimer’s Disease ResearchOctober 1
PRESS RELEASE: Bringing Open Science to Drug Discovery for Alzheimer’sSeptember 16
BLOG: Reflections from the Mobile Health App Developer WorkshopSeptember 13
LAUNCH: Privacy Design Toolkit for Mobile HealthSeptember 11
Toward A Distributed, Benchmarking Ecosystem Using Electronic Healthcare DataSeptember 5
Press Release: CommonHealth Will Enable Android™ Phone Users to Access and Share their Electronic Health Record Data with Trusted Apps and PartnersAugust 22
BLOG: After the Sage 10th Anniversary Assembly – Broadening Our PerspectivesJuly 9
BLOG: In which Sage turns 10 and celebrates with their communityMay 25
LAUNCH: My BP Lab 2.0 Now Available in 6 New MarketsMay 20
Nerve Fibers in Skin Are Involved in Initiating Neurofibromas in Patients with Disfiguring Neurofibromatosis 1May 15
Sage Announces Scientific Advisory BoardApril 24
Bridging Privacy Policy with Product DesignApril 23
Bringing Open Science to NeuroinformaticsApril 23
On the Ethics of Open ScienceApril 23
Reproducibility in Computational AnalysisApril 23
From Open Systems to Trusted Systems: New Approaches to Data CommonsApril 23
How Data Commons Can Support Open ScienceMarch 23
Voices from the Open Science MovementMarch 23
Recognizing the Successes of Open ScienceMarch 23
Open Science is About the Outcomes, Content, and Process of ResearchMarch 23
Do Scientists Reuse Open Data?March 23
Open Science: To What End?March 18
Sage Welcomes 3 New Board MembersMarch 4
A Critical Assessment of Open ScienceJanuary 11
Why You Should Care About Universal Informed ConsentJanuary 10
Induced Pluripotent Stem Cells (iPSCs) Generated from Human NF1 Associated Plexiform Neurofibromas made available to the research community
2018
December 14
Sage’s Synapse Platform Key to Data Coordination for PsychENCODE ConsortiumNovember 18
Wellcome Trust partners with Sage Bionetworks to launch Wellcome Data Re-use PrizesNovember 13
Using Open Technology Platform to Help Develop Community Resource for Mobile Cognitive TrackingNovember 5
Elements of Informed ConsentOctober 7
Bringing Scientists Together to Speed DiscoveryOctober 4
Winners of Sage Digital Health Catalyst Program AnnouncedJuly 20
Sage Bionetworks launches interactive, web-based explorer, Agora in conjunction with NIH-led AMP-AD Target Discovery and Preclinical Validation ProjectJune 15
New Research Tools Available in the Search for Therapies for Neurofibromatosis Type 1 (NF1)June 13
Children’s Tumor Foundation – Synodos for NF2 Consortium Publishes Key Results of its WorkApril 5
Leading Cancer Research Organizations Jointly Unveil Comprehensive Immunotherapy Tool to Analyze Interactions Between Tumors and Immune MicroenvironmentMarch 15
UCSF and Sage Bionetworks announce stress research study leveraging new sensor technologies on the Samsung Galaxy S9 and S9+
2017
November 3
Sage Bionetworks is part of a consortium of universities and research groups which has received a five-year, $25 million grant from the National Center for Advancing Translational ScienceAugust 21
Novartis launches first large-scale research study in multiple sclerosis that allows participants to contribute from smartphonesAugust 14
Sage Bionetworks and Celgene Corporation announce the launch of Journey PRO, a mobile health research study designed to improve the lives of patients living with chronic anemiaJuly 20
Progress is being made in the use of personalized approaches to create both in vitro and in vivo tumour modelsJuly 10
DREAM Challenge Community competition launches to learn how to use smartphone and wearable sensors to monitor healthJune 27
Wall Street Journal reports abundant health data gathered by phones produces better, more timely studies, citing Sage Bionetworks’ mobile health programJune 2
IBM and Sage Bionetworks announce winners of first phase of DREAM Digital Mammography ChallengeJune 1
First Analysis of AACR Project GENIE Data Published, demonstrating potential of data-sharing initiatives to accelerate the pace of progress against cancerMay 17
Sage supported Mobile Health App for Bipolar Patients Wins Robert Wood Johnson Foundation Mood ChallengeMarch 2
Parkinson’s researchers use smartphones to measure disease progression, treatment effects in clinical substudyFebruary 23
Turning the Unknown into the Known – Data mining is increasingly used to prospect for rare-disease biology and treatmentsFebruary 14
Sharing Skin-Selfies for Science: melanoma study releases participant generated smartphone data to research community worldwideFebruary 14
Sharing Skin-Selfies for Science: melanoma study releases participant generated smartphone data to research community worldwideFebruary 1
Cancer Research Institute Awards Grant to Develop Powerful Genomic Data Resource for Cancer Immunotherapy ResearchersJanuary 5
AACR Project GENIE Publicly Releases Large Cancer Genomic Data Set
2016
December 1
Parker Institute for Cancer Immunotherapy and Cancer Research Institute Launch Collaboration on Cancer NeoantigensDecember 1
Sean Parker’s I/O group teams up with CRI for cancer neoantigens R&D dealNovember 30
mPower ResearchKit Blog – Participant-centered research in a rocky data sharing climateNovember 16
Prostate Cancer Challenge – Crowdsourcing a better prostate cancer prediction toolNovember 9
NCI Launches New Cancer Systems Biology Consortium – CSBCOctober 24
Conversations on Health Care Features John Wilbanks, CCO, Sage BionetworksOctober 18
Celgene Corporation and Sage Bionetworks Announce Technology Collaboration to Develop Observational Study Using the Apple ResearchKit FrameworkOctober 16
First ResearchStack App, MoleMapper, Launches on AndroidOctober 7
ResearchStack Goes Live, Opening mHealth Studies to the Android EcosystemOctober 7
Hundreds of experts team up to improve early detection of breast cancerSeptember 28
Gene expression elucidates functional impact of polygenic risk for schizophrenia publication in Nature NeuroscienceSeptember 7
The Digital Mammography DREAM ChallengeSeptember 1
Seattle artificial intelligence experts enlisted in Cancer Moonshot coding challengeSeptember 1
$1.2M crowdsourced contest aims to improve breast-cancer detection through deep machine learningAugust 15
Breast cancer imaging challenge one part of achieving Cancer MoonshotAugust 3
International team launches community competition to unravel how cancer changes a cell’s RNAAugust 3
International team launches community competition to find how cancer changes a cell’s RNAJuly 22
Health data should belong to patients, Topol arguesJuly 20
Sage Bionetworks Advocates for Open Systems in Health ResearchJuly 20
Nature Commentary – Stop the Privatization of Health DataJuly 15
DREAM Publication Featured on the Cover of Nature Reviews GeneticsJuly 6
Sage Bionetworks joins with The Scripps Research Institute (TSRI) for President Obama’s All of Us Research ProgramJuly 6
TSRI Awarded $20 Million for U.S. Precision Medicine Initiative Cohort ProgramJune 29
Digital Mammography DREAM ChallengeJune 23
Sage Bionetworks Announces the Promotion of Lara Mangravite to PresidentApril 18
TEDMED: Making Connections Through Data: What would health and health care look like if the millions of people tracking their activity everyday donated their personal data to research?April 16
The Economist: Genetic superheroes; An extensive study of the genetics of more than 500,000 people has revealed a different kind of mutant superheroApril 12
The Independent: ‘Genetic superheroes’ are real and could lead to life-saving treatments – but nobody can talk to themApril 11
Researchers from Mount Sinai and Sage Bionetworks Report Analysis of Nearly 600,000 Genomes for Resilience ProjectApril 11
STAT: Genetic ‘unicorns’ defy their own DNA — and could hint at new treatmentsApril 11
The Mirror (UK): Genetic superheroes could bring life-saving treatment to millionsApril 11
The Guardian: Scientists search for 13 people to solve genetic mutation mysteryApril 11
MIT Technology Review: Search for New Medical Treatments Zeroes In on Genetic SuperheroesApril 11
Wired: Genetic Superheroes Walk Among Us, But Shhh! No One Can Tell ‘EmApril 11
New Scientist: The genetic superheroes who have mutations but not the diseaseApril 11
The Atlantic: Thirteen Anonymous Genetic Superheroes Walk Among UsApril 11
PBS: These 13 adults escaped deadly genetic childhood disorders, but how?April 11
BBC News: ‘Superhero DNA’ keeps diseases at bayApril 11
Nature Press ConferenceApril 11
Popular Science: SCIENTISTS DETECT WHICH PATIENTS ARE RESISTANT TO GENETIC DISEASESApril 11
Science: ‘Buffer genes’ may protect these 13 people from rare genetic diseasesApril 11
NPR: How Do ‘Genetic Superheroes’ Overcome Their Bad DNA?April 11
The New York Times: People Who Avoided Illness Could Be Key in Treating Those Who Didn’tApril 6
Yahoo: Apple’s ResearchKit Takes Medical Research Years Into the FutureMarch 30
mHealth Intelligence: ResearchKit Project Makes its Data PublicMarch 24
ALZFORUM: Mobile Phone App for Parkinson’s Patients Tests New Model for Data SharingMarch 21
Sage Bionetworks Uses Participant Feedback to Update mPower AppMarch 21
Nature: Mobile-phone health apps deliver data bountyMarch 21
MIT Technology Review: Apple Hopes You’ll Talk to Your iPhone and Call Your Doctor in the MorningMarch 7
Parkinson’s News Today: 6-month Data from Parkinson’s mPower App Study in 9,500 People Released to ResearchersMarch 4
Politico: RESEARCH KIT BEARS FRUITMarch 4
Fierce Healthcare: Open-science nonprofit trots out promising data from study of iPhone app for Parkinson’sMarch 3
HIT Consultant: Sage Bionetworks Releases ResearchKit Data from 9,500 Parkinson’s Patients for Researchers WorldwideMarch 3
International Business Times: Apple Inc.’s ResearchKit Enables iPhone Parkinson’s Disease Study To Release Treasure Trove Of DataMarch 3
Sage Bionetworks Releases First-of-Its-Kind Data from Parkinson’s iPhone StudyMarch 2
mobi health news: Sage Bionetworks releases data from first six months of Parkinson’s mPower ResearchKit studyFebruary 17
2015 DREAM Challenge video
2015
November 17
International Team Announces Crowdsourcing Competition, Running on Google Cloud Platform, To Understand How Cancers Originate And EvolveNovember 16
International Team Announces Crowdsourcing Competition, Running on Google Cloud Platform, To Understand How Cancers Originate And EvolveNovember 5
Prize4Life, Sage Bionetworks and DREAM Announce Winners of ALS Stratification ChallengeNovember 5
Prize4Life, Sage Bionetworks and DREAM Announce Winners of ALS Stratification ChallengeOctober 19
Winners Recognized for Crowdsourcing and Data Sharing Competition to Drive Innovation in Prostate Cancer ResearchOctober 19
Winners Recognized for Crowdsourcing and Data Sharing Competition to Drive Innovation in Prostate Cancer ResearchOctober 15
Sage Bionetworks Launches Mole Mapper, an iPhone-app Research Study to Better Understand MelanomaOctober 12
International Consortium Trailblazing the Genomic Classification of Colorectal Cancer Through Big DataOctober 8
Nature Biotechnology: GSK Collaborates with Apple on ResearchKitOctober 7
White HouseOctober 6
the White House: Celebrating the Five-Year Anniversary of Challenge.gov with More Than 20 New PrizesSeptember 22
AstraZeneca supports crowd sourcing challenge to find new combination therapies for cancerSeptember 22
AstraZeneca Supports Crowd Sourcing Challenge to Find New Combination Therapies for CancerSeptember 10
Healthcare IT News: BM Ramps up Watson with Products and PartnershipsSeptember 10
TechRepublic: IBM Watson Health computes a pair of new solutions to improve healthcare data and securitySeptember 10
Health Data Management: New Uses, Clients for IBM Watson HealthSeptember 10
IBM: IBM Watson Health Announces New Partnerships, New Cloud Services and Global HQ in Cambridge, MASeptember 4
St. Baldrick’s Foundation Awards Sage a $610,000 GrantSeptember 4
The AstraZeneca-Sanger Drug Combination Prediction DREAM Challenge Opens!August 27
Winners Announced for Crowdsourcing and Data Sharing Competition to Drive Innovation in Prostate Cancer ResearchAugust 24
Timmerman Report: Informed Consent isn’t working, Apple just might be onto something betterAugust 17
Project Data Sphere, LLC Executive AppointmentsJuly 22
Science Translational Medicine: App-enabled trial participation: Tectonic shift or tepid rumble?June 24
New Prize Competition Hopes to Boost Discovery of Novel Breast Cancer Genetic PathwaysJune 23
Prize4Life, Sage Bionetworks and DREAM Launch an Open Science Challenge to Find Clues to Understanding Heterogeneity in Patients with Amyotrophic Lateral Sclerosis (ALS)June 3
Biomedical Computation Review: Crowdsourcing to Experts: The DREAM ChallengesMay 15
Fusion: How diversity in science can improve communitiesMay 4
FCW: Delivering on the promise of big dataApril 23
newsworks: For breast cancer research, Apple delivers strength in numbers approachApril 6
Nature Methods: Cancer: smoother journeys for molecular dataApril 2
New York Times: Using Patient Data to Democratize Medical DiscoveryApril 2
NEW FRONTIERS: Electronic Sensors Break New Ground in Neurology Practice and ResearchMarch 13
Science Friday: ‘ResearchKit’ Taps iPhone Users for Clinical TrialsMarch 12
Forbes: In Big Shift, 23andMe Will Invent Drugs Using Customer DataMarch 12
The Scientist: Will Apple’s ResearchKit Change Science?March 10
WBUR: An App For That: iPhones As Medical Research ToolsMarch 10
Medium: Better by Default An Access Conversation with John WilbanksMarch 10
Nature: Smartphones set to boost large-scale health studiesMarch 10
Marketplace: Apple’s ResearchKit links iPhones to medical researchMarch 10
TIME: How Apple’s New Health App Could Be Used — or AbusedMarch 9
WIRED: Can Apple’s ResearchKit Really Change Medical Research?March 9
Sage Bionetworks and The Michael J. Fox Foundation Collaborate to Amplify Parkinson’s Patient Voice in ResearchMarch 9
Sage Bionetworks Launches Parkinson mPower App to Study Parkinson’s Disease Symptom VariationMarch 9
Sage Bionetworks Launches “Share the Journey” iPhone App to Study Breast CancerMarch 9
Sage Bionetworks Launches “Share the Journey,” A Mobile App-Based Research Study for the Breast Cancer CommunityMarch 5
GenomeWeb: Sage Bionetworks Releases First Datasets from NIH-led Alzheimer’s Disease InitiativeJanuary 28
Harvard News and Events: Reengineering privacy, post-Snowden
2014
December 28
New York Times: In a New Approach to Fighting Disease, Helpful Genetic Mutations Are SoughtJune 2
DREAM and Sage Bionetworks Open Three Big Data Challenges to Impact Biomedical and Clinical ResearchJune 2
Big Data Challenge for Alzheimer’s Disease Launches in Global Effort to Use Innovative Open Science Techniques to Improve Diagnosis and TreatmentMay 29
CORRECTING and REPLACING The Resilience Project, A New Approach to Understanding the Role of Genes in Health and Disease, Profiled in Science and TED TalkMarch 19
TEDTalk (video): Want to prevent genetic disease? Study the healthy … right now: Stephen Friend at TED2014February 5
Patients Like Me and Sage Bionetworks Launch Open Science Study for People with Parkinson’s DiseaseJanuary 31
NPR TED RadioHour: Is Too Much Privacy Bad For Your Health?
2013
November 11
Heritage-Dream, National Cancer Institute Breast Cancer Network Inference Challenge Announces Best PerformersNovember 8
Canadian and U.S. leaders in cancer research announce a big data challenge to develop robust methodologies for predicting cancer mutationsNovember 7
Global CEO Initiative on Alzheimer’s Disease Announces a Big Data Challenge to Find New Predictors of Cognitive DeclineSeptember 27
Sage Bionetworks Announces Program to Develop BRIDGE: An IT Platform That Leverages Patient Wisdom and Data for 21st Century Biomedical ResearchSeptember 23
Collaborating in Real Time: Sage Bionetworks’ Open Software Platform Enables First Round of Collaborative Cancer Projects on Large Genomic Data SetsJune 22
“Open Science Champion of Change” Sage Bionetworks’ Stephen Friend: Honored at White House EventJune 18
The White House: White House to Highlight Open Science “Champions of Change”June 4
The Scientist: May the Best Model WinApril 19
DREAM and Sage Bionetworks Announce Big Data Challenges to Impact Biomedical and Clinical ResearchApril 19
Heritage-Dream, National Cancer Institute Breast Cancer Network Inference Prize AnnouncedApril 17
Two Science Translational Medicine Reports: DREAM and Sage Bionetworks Tap into the Wisdom of the Crowd to Fight the Challenge of Breast Cancer Prognosis and TreatmentFebruary 19
The DREAM Project Joins Sage Bionetworks to Enable Collaborative ScienceFebruary 13
CommonMind Consortium Expands Public-Private Effort to Generate and Broadly Share Molecular Data on Neuropsychiatric Disease
2012
December 19
H3 Biomedicine Announces Strategic Collaboration with Sage Bionetworks to Advance Cancer-Genomics ResearchSeptember 12
Science Translational Medicine: A Model ChallengeAugust 1
The Scientist: Sage Bionetworks named one of the Best Places to Work Academia, 2012April 9
CommonMind Consortium Launched as a Public-Private Effort to Generate and Broadly Share Molecular Data on Neuropsychiatric Disease