The Platform and Governance teams at Sage Bionetworks work across the organization and beyond to support collaborative research. Whether the projects fall under scientific coordination, challenges and benchmarking, or digital health, the Platform and Governance teams are integral to their success. Because we advocate for open-science practices and improving accessibility to resources, many of the technologies, user research expertise, and governance procedures and policies that we have developed are available to the wider scientific community to use.
Tools & Resources
A set of web services and tools that make it easier for researchers to aggregate, organize, analyze, and share scientific data, code, and insights.
A platform for conducting biomedical research studies primarily using the ResearchKit (iOS) and ResearchStack (Android) frameworks.
An open-science, collaborative competition framework for evaluating and comparing computational algorithms.
Agora is an interactive platform for visually exploring curated genomic analyses of Alzheimer’s disease (AD) including a list of early AD candidate target nominations
What risks exist when companies carry so much consumer data? How can good practice and regulations mitigate these risks? Panelists discuss this during the Future of Health Summit 2019.
The Mobile Health App Developer Workshop took place at the New York Genome Center on Sept. 12, 2019. Sage Bionetworks hosted the workshop. This talk features Meg Doerr, of Sage Bionetworks, on the Elements of Informed Consent.
Learn from Megan Doerr, Principal Scientist, Governance, about Sage Bionetworks’ Elements of Informed Consent toolkit.
Developed by the Sage Governance Team, the toolkit shares basic information and best practices for developing an effective consenting process.
The Privacy Toolkit provides biomedical researchers with a catalog of design tools and patterns to use throughout the user journey of their mHealth studies and allow users to learn more about data privacy and management.
The goal of readability analysis is to make copy be understandable by the largest audience possible. This primer on readability can help you get started.
Sage Bionetworks has developed a novel multi-media approach to addressing transparency and comprehension within electronic informed consent (eConsent) for app-mediated research studies.