Sage Bionetworks has developed a novel multi-media approach to addressing transparency and comprehension within electronic informed consent (eConsent) for app-mediated research studies. We deployed this eConsent process in minimal-risk research studies. Here we describe the rationale for the framework selected and best practice for application of the framework in other clinical studies.
Using Patient Data in Research: Balancing Benefits and Risks
What risks exist when companies carry so much consumer data? How can good practice and regulations mitigate these risks? Panelists discuss this during the Future...
Informed Consent for Web Apps
The Mobile Health App Developer Workshop took place at the New York Genome Center on Sept. 12, 2019. Sage Bionetworks hosted the workshop. This talk...