John Wilbanks, Chief Commons Officer of Sage Bionetworks, participated in the panel “Using Patient Data in Research: Balancing Benefits and Risks.” The panel took place during Milken’s Institute’s Future of Health Summit 2019.
We are capturing, tracking, and creating more data than ever about our lifestyle and health. More and more companies hold our data, which we sign away by indicating that we’ve read extensive privacy policies, when few of us actually have. And there are major gaps, loopholes, and complexities in the regulations that protect our data. Yet, when put to good use, these masses of data might help us manage our health, help providers understand the patient experience, and help researchers glean new insights about disease and biology. What risks exist when companies carry so much consumer data? How can good practice and regulations mitigate these risks? Our panel of experts will discuss these issues and lead a conversation about how we can shift towards an environment where health data is used to empower patients, while also being used to glean new insights for research and move the field forward.
Senior News Editor, STAT
Dawn Barry, President and Co-Founder, LunaDNA
Andrea Coravos, Co-Founder and CEO, Elektra Labs
Deven McGraw, Chief Regulatory Officer, Ciitizen
Pamela Powers, Chief of Staff, US Department of Veterans Affairs
John Wilbanks, Chief Commons Officer, Sage Bionetworks