NF Data Portal

The first, and now foremost, open data portal for uncovering new insights into neurofibromatosis and schwannomatosis. The NF data portal is a hub for research tools, experimental sample data and community initiatives that can help address understudied rare diseases that have little to no treatment options.

Launch NF Data Portal

The NF Data Portal was developed by the NF Open Science Initiative (NF-OSI), an alliance that was formed to support open science within the neurofibromatosis and schwannomatosis research community. The portal is supported by the Children’s Tumor Foundation, the Neurofibromatosis Therapeutic Acceleration Program, the Gilbert Family Foundation and the Leona M. & Harry B. Helmsley Charitable Trust.

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